Empowering the Refsum


2020 Refsum Congress

London, UK

May 15, 2020


Driving Forward Our Collaborative Network of Clinicians, Researchers, Patients and Caregivers

Congress Registration 

Step 1: Complete the Registration form for each participant

Step 2: Purchase your Congress Ticket(s) and Dinner ticket(s) (if applicable).


To register, please take the time to fill out the information below.


  • Update from the Global DARE Foundation

  • Clinical & Scientific Overview of Refsum

  • Refsum Diet, Overview and Discussion

  • Potential Therapeutic Treatments & Cure for Refsum

  • Refsum Expert Q&A Panel

  • Patient stories throughout the day



Registration fee:  $15 US

includes refreshments and lunch.


Dinner: $30 US

Thursday 14th May 2020


Location: Guy’s & St Thomas Education Centre

Hotel Accommodations

Hotel accommodations are not included in the cost of the registration.  A block of room has not been secured so it is recommended that you book early to secure an economical room rate.  The following are some nearby  hotels:

  • Premier Inn Waterloo

  • Premier Inn County Hall

  • Park Plaza London Waterloo

  • Hampton By Hilton London Waterloo

  • Travelodge London Central Waterloo

  • Holiday Inn Express London

Congress Sponsors

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