Empowering the Refsum

Community

2020 Refsum Congress

London, UK

May 15, 2020

8:30-5:30pm

Driving Forward Our Collaborative Network of Clinicians, Researchers, Patients and Caregivers

Congress Registration 

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Step 1: Complete the Registration form for each participant

Step 2: Purchase your Congress Ticket(s) and Dinner ticket(s) (if applicable).

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Agenda

• Update from the Global DARE Foundation

• Clinical & Scientific Overview of Refsum

• Refsum Diet, Overview and Discussion

• Potential Therapeutic Treatments & Cure for Refsum

• Refsum Expert Q&A Panel

• Patient stories throughout the day

Registration fee:  $15 US

includes refreshments and lunch.

Dinner: $30 US

Thursday 14th May 2020

Location: Guy’s & St Thomas Education Centre

Hotel Accommodations

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Hotel accommodations are not included in the cost of the registration.  A block of room has not been secured so it is recommended that you book early to secure an economical room rate.  The following are some nearby  hotels:

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• Premier Inn Waterloo

• Premier Inn County Hall

• Park Plaza London Waterloo

• Hampton By Hilton London Waterloo

• Travelodge London Central Waterloo

• Holiday Inn Express London

Congress Sponsors