Empowering the Refsum


2020 Refsum Congress

London, UK

May 15, 2020


Driving Forward Our Collaborative Network of Clinicians, Researchers, Patients and Caregivers

Congress Registration 

Step 1: Complete the Registration form for each participant

Step 2: Purchase your Congress Ticket(s) and Dinner ticket(s) (if applicable).


To register, please take the time to fill out the information below.


  • Update from the Global DARE Foundation

  • Clinical & Scientific Overview of Refsum

  • Refsum Diet, Overview and Discussion

  • Potential Therapeutic Treatments & Cure for Refsum

  • Refsum Expert Q&A Panel

  • Patient stories throughout the day



Registration fee:  $15 US

includes refreshments and lunch.


Dinner: $30 US

Thursday 14th May 2020


Location: Guy’s & St Thomas Education Centre

Hotel Accommodations

Hotel accommodations are not included in the cost of the registration.  A block of room has not been secured so it is recommended that you book early to secure an economical room rate.  The following are some nearby  hotels:

  • Premier Inn Waterloo

  • Premier Inn County Hall

  • Park Plaza London Waterloo

  • Hampton By Hilton London Waterloo

  • Travelodge London Central Waterloo

  • Holiday Inn Express London

2020 Refsum Congress Ticket

2020 Refsum Congress Ticket

2020 Refsum Congress Dinner

2020 Refsum Congress Dinner


Congress Sponsors

Contact us

P.O.Box 865

Windham, Maine 04062

United States


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This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition. 

© 2021 Global DARE Foundation