2020 DARE Annual Report

Global DARE Foundation had an amazing first year because of the support of our Refsum community of patients, caregivers, clinicians, researchers, and supporters. We really appreciate your participation with us this year!

You will see in the annual report (link below) the great progress we are making towards our mission of improving the lives of those diagnosed with Refsum disease. What we have been able to accomplish in the first year shows with focus and determination we can make a difference even in a disease as rare as Refsum disease.

We look forward to an even better 2021. We will continue our focus on improving treatment and care, driving more research, raising awareness and collaborating with others who can help us advance our mission faster.

We are looking to expand our Board of Directors in 2021. If you are interested in serving on our Board or volunteering in some way, please feel free to message us at anytime.


Contact us

P.O.Box 865

Windham, Maine 04062

United States


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EIN: 84-3343395

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This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition. 

© 2021 Global DARE Foundation