Our 2020 Refsum Congress registration is now live on our website. It will be in London, UK on May 15, 2020. This will be a key milestone for Global DARE Foundation​. It will be the first time in over 15 years that the Refsum Community will come together to drive forward collaboration between patients, caregivers, clinicians and researchers. Experts in the field of Refsum disease, peroxisomal disorders, genetics and retinal disease will be presenting on a variety of topics. Check out our website for more details.