Celebrating Refsum Community Success

It is amazing how much can be accomplished when a community comes together! Global DARE Foundation was founded in October 2019. With tremendous support, in just 6 short months the foundation has been able to launch a website, run two fundraisers, establish an experienced Medical & Scientific Advisory Board, partner with many foundations and organizations in rare disease and raise enough funds to start the first research project in testing Phytanic Acid in foods.

Big THANKS to all of you for your strong support!! You are helping to make a difference. Learn more about our Refsum Advocacy plan under the Get Involved tab.

Contact us

P.O.Box 865

Windham, Maine 04062

United States


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EIN: 84-3343395

501(c)(3) IRS Approval:

This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition. 

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