Rare Disease Week Fundraiser was a Success!
Global DARE Foundation has raised enough funds to research phytanic acid in foods! One of our top priorities for 2020 is to research more foods for their phytanic acid content. Refsum patients already have a very strict diet and often eliminate foods because they haven't been tested. Through the Whole Life Challenge and the Rare Disease Day fundraisers we have raised enough to fund our 2020 Conference in London and to issue a grant for more research on the phytanic acid content in foods. This will be a WIN for Refsum patients and for others that are impacted by metabolic disorders that accumulate phytanic acid. We will continue to pursue our mission one step at a time to improve the quality of life of Refsum patients! We will succeed!