Release of Refsum Whiteboarding Video
Global DARE Foundation collaborated with Youreka Science and our Medical and Scientific Advisory Board to create this easily understood whiteboarding video about Refsum Disease. It will be used to help raise awareness of Refsum Disease through use on social media and other media channels. Our hope is it will educate clinicians and people experiencing these symptoms to enable earlier diagnosis. Early diagnosis is so critical to improve the quality of life of people with Refsum disease.