It is amazing how much can be accomplished when a community comes together! Global DARE Foundation was founded in October 2019. With tremendous support, in just 6 short months the foundation has been able to launch a website, run two fundraisers, establish an experienced Medical & Scientific Advisory Board, partner with many foundations and organizations in rare disease and raise enough funds to start the first research project in testing Phytanic Acid in foods.

Big THANKS to all of you for your strong support!! You are helping to make a difference. Learn more about our Refsum Advocacy plan under the Get Involved tab.