I am excited to say that Global DARE Foundation is now a Patient Advocacy partner with the Global Leukodystrophy Initiative. Our voice will be heard as they shape this great initiative now and into the future!
"The Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN) is a consortium of scientists, industry stakeholders, and patient advocacy leaders working together to promote advances in the diagnosis and treatment of leukodystrophies. Specifically, it seeks to create a robust research infrastructure that will allow for collection and analysis of longitudinal natural history data, development of novel clinical outcome assessments, and identification of surrogate biomarkers – ultimately paving the way for transformative therapeutic trials across the leukodystrophies".
You can find out more by visiting their new website at http://theglia.org/