DARE Events

Global DARE Foundation conducts webinars and other events to engage and educate the Refsum Community.   

All times below are in Eastern Standard Time

Upcoming Events

Past Events

Refsum Diet Overview & Discussion

On July 24, 2020, Eleanor Baldwin & Sarah Firman the dietitians at  Guy's & St. Thomas Hospital in London  presented on the Refsum Disease Diet.


Watch the recorded video or click here to review the PowerPoint slides.

Science behind Refsum Disease

On July 1, 2020, Professor Ronald JA Wanders, PhD & Dr. Sacha Ferdinandussa, PhD from Academic Medical Center, UMC presented on the Science behind Refsum Disease


Watch the recorded video or click here to review the PowerPoint slides.

Clinical Overview of Refsum Disease

On June 12, 2020, Professor Anthony Wierzbicki, PhD, from the Guy's & St. Thomas Hospital in London presented a Clinical Overview of Refsum Disease 

Watch the recorded video or click here to review the PowerPoint slides.

Contact us

P.O.Box 865

Windham, Maine 04062

United States


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This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition. 

© 2020 Global DARE Foundation