DARE Events
Global DARE Foundation conducts webinars and other events to engage and educate the Refsum Community.
All times below are in Eastern Standard Time
Upcoming Events
Past Events
Refsum Diet Overview & Discussion
On July 24, 2020, Eleanor Baldwin & Sarah Firman the dietitians at Guy's & St. Thomas Hospital in London presented on the Refsum Disease Diet.
Watch the recorded video or click here to review the PowerPoint slides.
Science behind Refsum Disease
On July 1, 2020, Professor Ronald JA Wanders, PhD & Dr. Sacha Ferdinandussa, PhD from Academic Medical Center, UMC presented on the Science behind Refsum Disease
Watch the recorded video or click here to review the PowerPoint slides.
Clinical Overview of Refsum Disease
On June 12, 2020, Professor Anthony Wierzbicki, PhD, from the Guy's & St. Thomas Hospital in London presented a Clinical Overview of Refsum Disease
Watch the recorded video or click here to review the PowerPoint slides.