Help Us Find A Cure!

Refsum  Disease is a rare genetic disease that currently has no cure. 


Our collaborative network of clinicians, researchers, patients and supporters are in search of better therapeutic methods and ultimately a cure

Donations can made here or sent to the address below


Your contributions will make a difference!


Every Donation

Makes a Difference! 

Every dollar donated to

Global DARE  Foundation goes directly to our

Refsum Advocacy Plan.


We have no paid staff. But we do have essential annual expenses such as maintaining this website. 

For more details on our Refsum Advocacy plan click here


Contact us

P.O.Box 865

Windham, Maine 04062

United States

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EIN: 84-3343395

501(c)(3) IRS Approval:

This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition. 

© 2020 Global DARE Foundation