Help Us Find A Cure!
Refsum Disease is a rare genetic disease that currently has no cure.
Our collaborative network of clinicians, researchers, patients and supporters are in search of better therapeutic methods and ultimately a cure
Donations can made here or sent to the address below
Your contributions will make a difference!
Makes a Difference!
Every dollar donated to
Global DARE Foundation goes directly to our
Refsum Advocacy Plan.
We have no paid staff. But we do have essential annual expenses such as maintaining this website.
For more details on our Refsum Advocacy plan click here