Global DARE Foundation believes strongly in partnering with other patient support and advocacy organizations to advance its mission faster.
United Luekodystrophy Foundation
ULF's mission is to provide support to the leukodystrophy community and enable platforms to accelerate improving patient quality of life and finding cure. Global DARE Foundation President is also a Board member of ULF
Foundation Fighting Blindnesss
Since its founding in 1971, the Foundation Fighting Blindness has been dedicated to funding innovative research to find preventions, treatments, and cures for inherited retinal degenerative diseases that lead to blindness and affect more than 10 million people in the United States
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities. Global DARE Foundation is a Rare Foundation Alliance member of Global Genes
National Organization for Rare Disorders
NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. Global DARE Foundation is a member of NORD.
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 924 rare disease patient organisations in 72 countries. They are the voice of 30 million people affected by rare diseases throughout Europe.
Cambridge Rare Disease Network (CRDN)
Cambridge Rare Disease Network (CRDN) is a charity building a vibrant community to address the unmet needs of those living with rare conditions, their families and the professionals who work with them. Our vision is for a united voice underpinning the development of services and treatments.
The Haystack Project is committed to the Rare and Ultra Rare Disease Community. It brings together Innovators, Patients and Caregivers to educate and advocate for policies that recognize the unique circumstances of extremely rare conditions and treatments.
Global Leukodystrophy Initiative
Our shared research infrastructure supports collection and analysis of robust clinical data and biological specimen to pave the way for transformative therapeutic trials across the leukodystrophies.