The Global DARE foundation is a global community of patients, caregivers, healthcare professionals, and supporters, dedicated to improving the lives of those affected by Refsum Disease.
Many around the world face a lengthy diagnostic journey for years while losing their quality of life. The Global DARE Foundation will advocate for change.
Our goal is to support research, education initiatives, awareness campaigns, and advocacy.
Board of Directors
Our Board of Directors are part of the Refsum Disease Community and are highly motivated to do whatever it takes to find better therapeutic methods and ultimately a cure. We are fighting with disease on a day to day basis. This gives every aspect of what we do more purpose and meaning as it directly affects as well as inspires us!