Refsum Diet

A diet low in phytanic acid is used for long-term management of Refsum Disease.  This diet includes the exclusion of foods that are high in phytanic acid such as dairy products, beef, lamb and some fish.

Recorded Videos

At DARE Fest 2022, Eleanor Baldwin and Sarah Firman, Clinical Dietitians in the Adult Inherited Metabolic Diseases team at St Thomas’ Hospital, London, presented on a variety of topics including the updated diet guide based on the new food testing funded by Global DARE Foundation's Food Testing Program. Watch these important videos below.

Updated Diet Guide Presentation

Exercise in Adult Refsum Disease

Introduction to Food Labels

Illness and Fasting for Adult Refsum Disease