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Refsum Diet

A diet low in phytanic acid is used for long-term management of Refsum Disease.  This diet includes the exclusion of foods that are high in phytanic acid such as dairy products, beef, lamb and some fish.

Recorded Videos

Following a strategic revamp of the Refsum diet, Eleanor Baldwin and Sarah Firman, expert dietitians from the Adult Inherited Metabolic Diseases team at Guys & St. Thomas Hospital, London, delivered a presentation unveiling the updated Refsum Diet Guidelines. These guidelines are based on the latest food testing program, generously funded by the Global DARE Foundation. Watch these important videos below.

Updated 2024 Diet Guide Presentation

Exercise in Adult Refsum Disease

Introduction to Food Labels

Illness and Fasting for Adult Refsum Disease

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