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Do you have Refsum Disease?

Defeat

Adult Refsum Everywhere

Global DARE Videos

As part of Global DARE Foundation's goals we look to raise awareness and conduct educational webinars and videos to all that are interested in learning more about Refsum Disease

What is Refsum Disease? (4 languages)

Picture of the symptoms of Refsum Disease. The link brings you to the "What is Refsum disease? video playlist

Community Stories

A picture collage of Refsum patient meet-ups. The link brings you to a patient story playlist

Clinical Care & Diet Guideline Updates

A picture collage of Clinical Care & Diet Guideline webinars. The link brings you to a webinar playlist.

Scientific & Research Updates

A picture collage of Scientific and Research webinars. The link brings you to a webinar playlist.

Global DARE Updates

A photo of Global DARE presentation. The link brings you to a webinar playlist.

Educational Videos

A picture collage of Education videos. The link brings you to a video playlist.

Patient Collaborator Training Series

A picture of the video on What is a Patient Collaborator. The link brings you to a video playlist.

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