Clincial Overview of Refsum Disease

DARE Videos

As part of Global DARE Foundation's goals we look to raise awareness and conduct educational webinars and videos to all that are interested in learning more about Refsum Disease

Science behind Refsum Disease

On July 1, 2020, Professor Ronald JA Wanders, PhD & Dr. Sacha Ferdinandussa, PhD from Academic Medical Center, UMC presented on the Science behind Refsum Disease

 

Watch the recorded video or click here to review the PowerPoint slides.

ULF Conference Presentation

On June 25, 2020, Kristie DeMarco, President Global DARE Foundation & Dr Florian Eichler, MD the Associate Professor of Neurology at Mass General Hospital and Harvard Medical school presented on Refsum Disease at the ULF Conference. 

 

Watch the recorded video or click here to review the PowerPoint slides.

Clinical Overview of Refsum Disease

On June 12, 2020, Professor Anthony Wierzbicki, PhD, from the Guy's & St. Thomas Hospital in London presented a Clinical Overview of Refsum Disease. 

 

Watch the recorded video or click here to review the PowerPoint slides.

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Disclaimer:
This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition. 

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