Clincial Overview of Refsum Disease
DARE Videos
As part of Global DARE Foundation's goals we look to raise awareness and conduct educational webinars and videos to all that are interested in learning more about Refsum Disease
Science behind Refsum Disease
On July 1, 2020, Professor Ronald JA Wanders, PhD & Dr. Sacha Ferdinandussa, PhD from Academic Medical Center, UMC presented on the Science behind Refsum Disease
Watch the recorded video or click here to review the PowerPoint slides.
ULF Conference Presentation
On June 25, 2020, Kristie DeMarco, President Global DARE Foundation & Dr Florian Eichler, MD the Associate Professor of Neurology at Mass General Hospital and Harvard Medical school presented on Refsum Disease at the ULF Conference.
Watch the recorded video or click here to review the PowerPoint slides.
Clinical Overview of Refsum Disease
On June 12, 2020, Professor Anthony Wierzbicki, PhD, from the Guy's & St. Thomas Hospital in London presented a Clinical Overview of Refsum Disease.
Watch the recorded video or click here to review the PowerPoint slides.