DARE Events

Global DARE Foundation conducts webinars and other events to engage and educate the Refsum Community.   

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Refsum Videos

Watch recorded webinars and educational videos on Refsum Disease

Food Forum

Browse through Refsum Compliant Foods provided by the Refsum Community and share your own 

Food blog


Receive up to date news

on the work of the

Global DARE Foundation 

to advance

Refsum Advocacy





Our Mission

Global DARE Foundation's mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease. 

Our goal is to support research, education initiatives, awareness campaigns, and advocacy. Driving research is at the center of what we do because we DARE to believe there is a cure for Adult Refsum Disease. 

What is Refsum disease?

CLICK HERE to learn more about Refsum Disease

Refsum Diet


Food Forum

Download the Diet Guide HERE

Review & Contribute to the Food Forum HERE

2020 Advocacy plan

CLICK HERE to learn more about our plan for 2020

Refsum Community


CLICK HERE to learn more on how to join our Refsum Community

Join Us

Log In above to join  our website to gain access to site files and contribute to our Food Forum

Contact us

P.O.Box 865

Windham, Maine 04062

United States


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EIN: 84-3343395

501(c)(3) IRS Approval:

This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition. 

© 2020 Global DARE Foundation