Food blog

Refsum Diet

Review the details about the Westminster Refsum Diet used for Long Term Management of Refsum Disease

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Refsum Videos

Watch recorded webinars and educational videos on Refsum Disease

DARE Events

Global DARE Foundation conducts webinars and other events to engage and educate the Refsum Community.   



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Global DARE Foundation 

to advance

Refsum Advocacy

Our Mission

Global DARE Foundation's mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease. 

Our goal is to support research, education initiatives, awareness campaigns, and advocacy. Driving research is at the center of what we do because we DARE to believe there is a cure for Adult Refsum Disease. 

What is Refsum disease?

CLICK HERE to learn more about Refsum Disease

2020 Advocacy plan

CLICK HERE to learn more about our plan for 2020

Refsum Community


CLICK HERE to learn more on how to join our Refsum Community

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Contact us

P.O.Box 865

Windham, Maine 04062

United States

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EIN: 84-3343395

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This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition. 

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