top of page

Upcoming Events


As part of Global DARE Foundation's goals we try to attend and host as many events as possible to raise funs and awareness for our Refsum community. Take a look at what's coming up!


Global DARE is thrilled to announce our participation in the Foundation Fighting Blindness’s Visions 2024 Global Conference in Chicago, Illinois, from June 21st to the 22nd!

Join us as we champion Refsum Disease research and strengthen our partnership with the blind and low vision community to explore the latest advancements in research, products, and services.

Learn more about Visions 2024 and all the work Foundation Fighting Blindness does.

Past Events:

Screenshot 2024-05-24 105809.png

Global DARE was excited to attend ARVO's 2024 Meeting in Seattle, Washington May 5th through May 9th. 

ARVO is the largest gathering of Ophthalmologists in the world, and we were so excited to have our founder and president, Kristie DeMarco, in attendance!

bottom of page