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Global DARE Foundation hosted the DARE Fest 2022 from June 11-19th. This event was the first annual Refsum Awareness Week. During the week, they hosted a variety of exciting virtual events to educate, raise awareness, build community around the world and have some fun. The event was for the entire Refsum Community including patients, caregivers, clinicians, dietitians, researchers and passionate supporters. Watch the new great new presentations below.
DARE Fest 2022 Videos
Presentation on the Updated Refsum Diet Guide
01:06:05
Boston Refsum Center of Excellence
09:30
Refsum Clinic at Guy's and St. Thomas Hospital
20:15
Refsum Disease - Clinical Care Panel
45:12
Adult Refsum Disease - Patient Experience Panel
52:11
Refsum Disease Research Panel
52:04
Adult Refsum Disease - Patient Experience Panel
57:48
Refsum Disease - We DARE to Believe
05:39
Introduction to Adult Refsum Disease
24:44
History of the Refsum Disease
25:19
Refsum Disease: Phytanic Acid 101
19:55
Adult Refsum Disease: Introduction to Food Testing
10:01
Food Label Reading for Adult Refsum Disease
16:14
Illness and Fasting for Adult Refsum Disease
13:30
Exercise and Adult Refsum Disease
11:52
Why are mouse models studies important to Refsum Disease research?
08:05
Part 1: Why are Metabolomic and Lipidomic studies important to Refsum Disease research?
14:45
Part 2: Why are Metabolomic and Lipidomic studies important to Refsum Disease research?
12:42
Meet Global DARE Foundation
15:20
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