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Global DARE Foundation hosted the DARE Fest 2022 from June 11-19th. This event was the first annual Refsum Awareness Week. During the week, they hosted a variety of exciting virtual events to educate, raise awareness, build community around the world and have some fun. The event was for the entire Refsum Community including patients, caregivers, clinicians, dietitians, researchers and passionate supporters. Watch the new great new presentations below.

DARE Fest 2022 Videos

DARE Fest 2022 Videos
Presentation on the Updated Refsum Diet Guide

Presentation on the Updated Refsum Diet Guide

01:06:06
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Boston Refsum Center of Excellence

Boston Refsum Center of Excellence

09:30
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Refsum Clinic at Guy's and St. Thomas Hospital

Refsum Clinic at Guy's and St. Thomas Hospital

20:15
Play Video
Refsum Disease - Clinical Care Panel

Refsum Disease - Clinical Care Panel

45:12
Play Video
Adult Refsum Disease - Patient Experience Panel

Adult Refsum Disease - Patient Experience Panel

52:12
Play Video
Refsum Disease Research Panel

Refsum Disease Research Panel

52:06
Play Video
Adult Refsum Disease - Patient Experience Panel

Adult Refsum Disease - Patient Experience Panel

57:48
Play Video
Refsum Disease - We DARE to Believe

Refsum Disease - We DARE to Believe

05:39
Play Video
Introduction to Adult Refsum Disease

Introduction to Adult Refsum Disease

24:44
Play Video
History of the Refsum Disease

History of the Refsum Disease

25:19
Play Video
Refsum Disease: Phytanic Acid 101

Refsum Disease: Phytanic Acid 101

19:55
Play Video
Adult Refsum Disease: Introduction to Food Testing

Adult Refsum Disease: Introduction to Food Testing

10:01
Play Video
Food Label Reading for Adult Refsum Disease

Food Label Reading for Adult Refsum Disease

16:14
Play Video
Illness and Fasting for Adult Refsum Disease

Illness and Fasting for Adult Refsum Disease

13:30
Play Video
Exercise and Adult Refsum Disease

Exercise and Adult Refsum Disease

11:52
Play Video
Why are mouse models studies important to Refsum Disease research?

Why are mouse models studies important to Refsum Disease research?

08:05
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Part 1: Why are Metabolomic and Lipidomic studies important to Refsum Disease research?

Part 1: Why are Metabolomic and Lipidomic studies important to Refsum Disease research?

14:45
Play Video
Part 2: Why are Metabolomic and Lipidomic studies important to Refsum Disease research?

Part 2: Why are Metabolomic and Lipidomic studies important to Refsum Disease research?

12:42
Play Video
Meet Global DARE Foundation

Meet Global DARE Foundation

15:20
Play Video

We have created special festival merchandise.  Access the DARE Fest Store to purchase event t-shirts, hoodies, bags and mugs. Part of the proceeds on any purchase at the store will benefit Global DARE Foundation.

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