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Global DARE Foundation will be hosting the DARE Fest 2022 from June 11-19th. This event will be the first annual Refsum Awareness Week. During the week, we will be hosting a variety of exciting virtual events to educate, raise awareness, build community around the world and have some fun. The event will be for the entire Refsum Community including patients, caregivers, clinicians, dietitians, researchers and passionate supporters.

Virtual Online Festival
June 11th-12th

Online event includes around the clock access to presentations, live Q&A sessions, recipe competition, breakout sessions, 1:1 networking and games. Access to the online festival activity will cost $29 (US) and will include access to prizes.

Virtual Team Meeting

DARE Fest 5K Activity
(June 11th–19th)

A virtual 5K activity (run, walk, bike, swim, roll, etc.) that can take place anytime throughout the week either individually or as groups. Tickets for the 5K are $29 (US) and will include access to prizes.


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A discounted ticket will be available for $49 (US) for those participating in both the 5K and the online festival. Special donor tickets are available for those wanting to support Global DARE Foundation's programs.

Early Bird

If you register before May 21st, you will receive $5 off (US) your registration by using this discount code: EarlyBirdSpecial

Patient Registry 

People with Refsum Disease who are enrolled in the Refsum patient registry will receive a $15 (US) discount code on their registration fee. If you haven't enrolled in the patient registry yet, you can enroll here: Refsum Patient Registry. 

Combo & Special
Donor Tickets

We have created special festival merchandise.  Access the DARE Fest Store to purchase event t-shirts, hoodies, bags and mugs. Part of the proceeds on any purchase at the store will benefit Global DARE Foundation.

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