COVID-19 resulted in moving Global DARE Foundation's 2020 Refsum Conference to a webinar series that was help through the summer. Topics included learning more about Refsum disease from both a clinical and scientific perspective, learning about the specialize diet for Refsum Disease and learning about the potential of gene therapy for Refsum disease. 200+ people across the Refsum Community attended these webinars live. The presentations were informative and the attendees had great questions. All webinars were recorded and are available for viewing on this website at the following link:
https://www.defeatadultrefsumeverywhere.org/dare-videos