DARE News

Global DARE Foundation will provide up to date news on its mission to improve the lives of those impacted by Refsum Disease

Apr 5, 2021

Global DARE Foundation announces collaboration with Kennedy Krieger Institute

Jan 16, 2021

Release of Refsum Whiteboarding Video

Dec 12, 2020

2020 DARE Annual Report

Nov 19, 2020

DARE Step Challenged Raised over $15K

Oct 19, 2020

Year 1 Success!

Aug 27, 2020

New Refsum Diet Guide Published

Aug 10, 2020

Patient Registry for Refsum Disease

Aug 7, 2020

Refsum Webinar Series was a great success

Jul 12, 2020

Foundation Fighting Blindness Partnership

May 20, 2020

Patient Worthy interviews Global DARE Foundation's President

Apr 26, 2020

Celebrating Refsum Community Success

Apr 1, 2020

New logo announced for Global DARE Foundation

Mar 21, 2020

May 2020 Refsum Conference will move to a webinar series

Mar 8, 2020

Rare Disease Week Fundraiser was a Success!

Mar 7, 2020

Global DARE Foundation is now a Platinum NORD Member

Feb 4, 2020

Global DARE Foundation receives the Platinum Seal of Transparency from GuideStar

Jan 25, 2020

Global DARE Foundation is now an Amazon Smile Charity

Jan 18, 2020

Whole Life Challenge Fundraiser was a Success!

Jan 4, 2020

2020 Refsum Congress Registration is now live

Jan 1, 2020

Medical & Scientific Advisory Board was established

Dec 26, 2019

The Global Leukodystrophy Initiative - Clinical Trials Network (GLIA-CTN)