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Global DARE Foundation announces collaboration with Kennedy Krieger Institute

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Release of Refsum Whiteboarding Video

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2020 DARE Annual Report

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DARE Step Challenged Raised over $15K

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Year 1 Success!

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New Refsum Diet Guide Published

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Patient Registry for Refsum Disease

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Refsum Webinar Series was a great success

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Foundation Fighting Blindness Partnership

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Patient Worthy interviews Global DARE Foundation's President

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Celebrating Refsum Community Success

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New logo announced for Global DARE Foundation

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May 2020 Refsum Conference will move to a webinar series

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Rare Disease Week Fundraiser was a Success!

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Global DARE Foundation is now a Platinum NORD Member

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Global DARE Foundation receives the Platinum Seal of Transparency from GuideStar

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Global DARE Foundation is now an Amazon Smile Charity

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Whole Life Challenge Fundraiser was a Success!

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2020 Refsum Congress Registration is now live

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Medical & Scientific Advisory Board was established

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The Global Leukodystrophy Initiative - Clinical Trials Network (GLIA-CTN)