DARE News

Global DARE Foundation will provide up to date news on its mission to improve the lives of those impacted by Refsum Disease

Jun 21, 2021

DARE to Believe 5K raised over $25K

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Apr 5, 2021

Global DARE Foundation announces collaboration with Kennedy Krieger Institute

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Jan 16, 2021

Release of Refsum Whiteboarding Video

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Dec 12, 2020

2020 DARE Annual Report

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Nov 19, 2020

DARE Step Challenged Raised over $15K

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Oct 19, 2020

Year 1 Success!

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Aug 27, 2020

New Refsum Diet Guide Published

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Aug 10, 2020

Patient Registry for Refsum Disease

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Aug 7, 2020

Refsum Webinar Series was a great success

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Jul 12, 2020

Foundation Fighting Blindness Partnership

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May 20, 2020

Patient Worthy interviews Global DARE Foundation's President

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Apr 26, 2020

Celebrating Refsum Community Success

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Apr 1, 2020

New logo announced for Global DARE Foundation

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Mar 21, 2020

May 2020 Refsum Conference will move to a webinar series

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Mar 8, 2020

Rare Disease Week Fundraiser was a Success!

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Mar 7, 2020

Global DARE Foundation is now a Platinum NORD Member

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Feb 4, 2020

Global DARE Foundation receives the Platinum Seal of Transparency from GuideStar

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Jan 25, 2020

Global DARE Foundation is now an Amazon Smile Charity

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Jan 18, 2020

Whole Life Challenge Fundraiser was a Success!

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Jan 4, 2020

2020 Refsum Congress Registration is now live

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Jan 1, 2020

Medical & Scientific Advisory Board was established

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Dec 26, 2019

The Global Leukodystrophy Initiative - Clinical Trials Network (GLIA-CTN)

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