Global DARE Foundation will provide up to date news on its mission to improved lives of those with Refsum Disease

New Refsum Diet Guide Published

Foundation Fighting Blindness Partnership

New logo announced for Global DARE Foundation

Global DARE Foundation is now a Platinum NORD Member

Whole Life Challenge Fundraiser was a Success!

The Global Leukodystrophy Initiative - Clinical Trials Network (GLIA-CTN)

Patient Registry for Refsum Disease

Patient Worthy interviews Global DARE Foundation's President

May 2020 Refsum Conference will move to a webinar series

Global DARE Foundation receives the Platinum Seal of Transparency from GuideStar

2020 Refsum Congress Registration is now live

Refsum Webinar Series was a great success

Celebrating Refsum Community Success

Rare Disease Week Fundraiser was a Success!

Global DARE Foundation is now an Amazon Smile Charity

Medical & Scientific Advisory Board was established

Contact us

P.O.Box 865

Windham, Maine 04062

United States


Follow us

  • Facebook
  • LinkedIn Social Icon
  • YouTube

EIN: 84-3343395

501(c)(3) IRS Approval:

This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition. 

© 2020 Global DARE Foundation