​

Release of Refsum Whiteboarding Video

​

2020 DARE Annual Report

​

DARE Step Challenged Raised over $15K

​

Year 1 Success!

​

New Refsum Diet Guide Published

​

Patient Registry for Refsum Disease

​

Refsum Webinar Series was a great success

​

Foundation Fighting Blindness Partnership

​

Patient Worthy interviews Global DARE Foundation's President

​

Celebrating Refsum Community Success

​

New logo announced for Global DARE Foundation

​

May 2020 Refsum Conference will move to a webinar series

​

Rare Disease Week Fundraiser was a Success!

​

Global DARE Foundation is now a Platinum NORD Member

​

Global DARE Foundation receives the Platinum Seal of Transparency from GuideStar

​

Global DARE Foundation is now an Amazon Smile Charity

​

Whole Life Challenge Fundraiser was a Success!

​

2020 Refsum Congress Registration is now live

​

Medical & Scientific Advisory Board was established

​

The Global Leukodystrophy Initiative - Clinical Trials Network (GLIA-CTN)