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DARE News

Global DARE Foundation will provide up to date news on its mission to improve the lives of those impacted by Refsum Disease

Dec 4, 2021

Board member announcements

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Nov 16, 2021

CoRDS Podcast on Global DARE's Patient Registry

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Nov 1, 2021

2021 DARE Annual Report

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Oct 19, 2021

Global DARE awarded a $50,000 grant

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Sep 11, 2021

Global DARE Foundation adds 7 new Board members

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Jun 21, 2021

DARE to Believe 5K raised over $30K

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Apr 5, 2021

Global DARE Foundation announces collaboration with Kennedy Krieger Institute

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Jan 16, 2021

Release of Refsum Whiteboarding Video

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Dec 12, 2020

2020 DARE Annual Report

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Nov 19, 2020

DARE Step Challenged Raised over $15K

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Oct 19, 2020

Year 1 Success!

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Aug 27, 2020

New Refsum Diet Guide Published

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Aug 10, 2020

Patient Registry for Refsum Disease

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Aug 7, 2020

Refsum Webinar Series was a great success

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Jul 12, 2020

Foundation Fighting Blindness Partnership

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May 20, 2020

Patient Worthy interviews Global DARE Foundation's President

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Apr 26, 2020

Celebrating Refsum Community Success

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Apr 1, 2020

New logo announced for Global DARE Foundation

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Mar 21, 2020

May 2020 Refsum Conference will move to a webinar series

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Mar 8, 2020

Rare Disease Week Fundraiser was a Success!

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Mar 7, 2020

Global DARE Foundation is now a Platinum NORD Member

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Feb 4, 2020

Global DARE Foundation receives the Platinum Seal of Transparency from GuideStar

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Jan 25, 2020

Global DARE Foundation is now an Amazon Smile Charity

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Jan 18, 2020

Whole Life Challenge Fundraiser was a Success!

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Jan 4, 2020

2020 Refsum Congress Registration is now live

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Jan 1, 2020

Medical & Scientific Advisory Board was established

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Dec 26, 2019

The Global Leukodystrophy Initiative - Clinical Trials Network (GLIA-CTN)

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