Global DARE Foundation will provide up to date news on its mission to improve the lives of those impacted by Refsum Disease

Global DARE Foundation announces collaboration with Kennedy Krieger Institute

Release of Refsum Whiteboarding Video

2020 DARE Annual Report

DARE Step Challenged Raised over $15K

Year 1 Success!

New Refsum Diet Guide Published

Patient Registry for Refsum Disease

Refsum Webinar Series was a great success

Foundation Fighting Blindness Partnership

Patient Worthy interviews Global DARE Foundation's President

Celebrating Refsum Community Success

New logo announced for Global DARE Foundation

May 2020 Refsum Conference will move to a webinar series

Rare Disease Week Fundraiser was a Success!

Global DARE Foundation is now a Platinum NORD Member

Global DARE Foundation receives the Platinum Seal of Transparency from GuideStar

Global DARE Foundation is now an Amazon Smile Charity

Whole Life Challenge Fundraiser was a Success!

2020 Refsum Congress Registration is now live

Medical & Scientific Advisory Board was established

The Global Leukodystrophy Initiative - Clinical Trials Network (GLIA-CTN)

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P.O.Box 865

Windham, Maine 04062

United States


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This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition. 

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