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The Global Leukodystrophy Initiative - Clinical Trials Network (GLIA-CTN)

We are excited to say that Global DARE Foundation​ is now a Patient Advocacy partner with the Global Leukodystrophy Initiative​. Our voice will be heard as they shape this great initiative now and into the future!

"The Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN) is a consortium of scientists, industry stakeholders, and patient advocacy leaders working together to promote advances in the diagnosis and treatment of leukodystrophies. Specifically, it seeks to create a robust research infrastructure that will allow for collection and analysis of longitudinal natural history data, development of novel clinical outcome assessments, and identification of surrogate biomarkers – ultimately paving the way for transformative therapeutic trials across the leukodystrophies".

You can find out more by visiting their new website at

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