In January 2020 Global DARE Foundation announced the formation of our Medical & Scientific Advisory Board. The board is made up of the foremost researchers and clinicians in the field of Refsum Disease, peroxisomal disorders and Retinitis Pigmentosa. In their roles as medical and scientific advisors, members collaborate with each other and with our Board of Directors to drive forward better quality of life for those diagnosed with Refsum Disease. Check out our website to view the members of our Medical & Scientific Advisory Board.